Facilitate and Promote Legislation
Increase federal investment in sickle cell care, treatment, and curative therapies to improve the lives of individuals and families.
Champion Programs and Initiatives
Enhance the capacity of personal and medical caregivers and community-based organizations.
Education and Research
Inform and advance the interests of individuals and families living with or post sickle cell.
Lead Policy Research
Update data on the number of individuals living with sickle cell in the United States, including those not captured in newborn screening and immigrants.
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