Pediatric Sickle Cell Care Initiative

Details:

• Description: The project involves collaborating with policymakers, healthcare professionals, and community leaders to draft, promote, and pass legislation that significantly increases federal investment in sickle cell disease. This includes funding for advanced medical research, improved healthcare services, and the development of curative therapies. Our advocacy efforts focus on creating policies that provide sustained support for individuals with sickle cell disease, ensuring they receive the care and treatment they need throughout their lives.
• Objectives: Secure increased federal funding for sickle cell research and treatment. Improve access to specialized healthcare providers and services. Promote the inclusion of sickle cell disease in national public health priorities. Establish a framework for ongoing legislative support and monitoring.
• Beneficiaries: Individuals and families living with sickle cell disease across the United States.
• Location: Nationwide

Funding Needs:

• Total Budget: $150,000
• Funds Raised: $90,000
• Remaining Needs: $60,000

Timeline:

• Start Date: Ongoing
• End Date: Continuous
• Milestones: Passage of initial legislation by Q2 2025. Securing funding commitments by Q4 2025.

Impact:

• Expected Impact: Create a more supportive legislative environment for sickle cell care, leading to better health outcomes and quality of life for affected individuals. Successful legislation will result in increased funding for research, more comprehensive healthcare services, and greater public awareness of sickle cell disease.
• Measurement: Progress will be tracked through legislative milestones, funding allocations, and feedback from the sickle cell community. Regular reports will detail the advancements in policy and the tangible benefits achieved through our advocacy efforts.

How You Can Help:

• Donation Options: Support our legislative advocacy efforts through one-time or recurring donations. Your contributions will help us continue our vital work in securing the necessary policies and funding for sickle cell care.
• Volunteering: Join our advocacy team to help with lobbying efforts, participate in awareness campaigns, and support our legislative initiatives.
• Partnerships: Partner with us to amplify our legislative efforts and extend our reach to more policymakers and stakeholders.